Today was great. Harper slept the entire night at the hospital. The nurse let her and so did I! Early this morning the doctor's did rounds and were so impressed with little Miss H. As soon as the Echo was done we could go home. Well the Echo showed a minor leak and I have been reassured by many doctors that this is normal and that with age and time it will diminish. After all, she did just have OHS and the heart needs time to remodel itself. Strangely enough, the leak diminished while she was eating....odd but I'll take it. The solution is to keep her on Enalapril and keep checking on it every month. Not a big deal.
We were home by 1:45 and it was blissful.
I'm glad this process is over and behind us. We did good. Real good. Harper was...well amazing. She barely fussed the entire time and just went with the flow. Proving that she is indeed the Best Baby Ever.
Now it's my turn to pay it forward. Not only repaying you all for the numerous prayers that were sent her way but to help other mama's prepare for their little darlings Heart Day. I have officially joined the OHS Mama Survival Club. While it's scary on the outside it's blissful on the inside.
If you've made it here because you are a mama with a baby who will need OHS and/or has Ds, send me an email. I have lots of advice and it's my turn to pay it forward.
Never again will her name be seen in the PICU
Lunch from Ronald McDonald House...super sweet
He's exhausted but happy to see us
Home Sweet Home...with Sophie the Giraffe