Tuesday, December 27, 2011

Support

Down syndrome seems scary. I'm not going to lie when we found out that our baby girl was going to have Down syndrome I cried. I cried my eyes out. And then I got real and researched. That's what a good mom does is to figure out a way to make it work. If I found out that Harper had a peanut allergy what would I do? Research it and make it work.

I searched the internet for information and support and I came across this wonderful blog community. I haven't met any of these parents and yet I feel like I should have their phone number, sent them a Christmas card, or to meet them for coffee. They know what I am going through. They know what to expect and have suggestions for how I can handle it the best way I can.

My family is supportive but these amazing people in blog land are equally as amazing and supportive. THANK YOU! The emails, posts, and Facebook messages that I have received are overwhelming and I have a feeling that I will receive more in the next week.

Today was hard. My worst so far. But I made it through and plan to keep doing that until I can bring Harper home. The surgery is one week away. By this time next Wednesday I expect my little muffin to be out of surgery and in her hospital room. I know I wont be able to hold her but to just see her will allow me  to breath again.

To lighten the mood how about some new pictures of Harper?! Thank you to my bf Kristin for taking these pictures last minute! I love you my real life friend and owe you big time!









6 comments:

Heidi Ehle said...

If you want my phone number all you have to do is ask.... :)
None of us would have made it through our babies' surgeries without the support, love and prayers of the others. Its a wonderful comfort to not only have those little bits of love and encouragement, but to have them from someone who truly has walked a mile (or a thousand) in your shoes before you. We have all made it through and are able to see the end results now. But we also understand that not a word we say will completely erase your fear. So we will just give you ons of virtual hugs, encourage you again and again, tell you it will be ok, and hold you to the Father in a million prayers.
Let me know if you need anything...
Much love to you (and kisses for baby Harper!)

Shona Bolden said...

Your experience is so similar to my own. I too got the diagnosis early on and my worst fear before that was a peanut allergy.

I will be praying for your little girl and keeping you guys in my thoughts. She is strong and the love you give makes her that much stronger.

Best,
Shona

V said...

Our thoughts and prayers are with you, even though we can only imagine what you're going through. On a different note, the pictures are beautiful! I especially love the one with everyone's feet.

The Holt's said...

I was a basket case before Isabelle had her surgery. (I sent you an email just now with some info from Isabelle's surgery.) But Isabelle amazed me at how strong she is. She is my new hero. I am hear to talk if you need anything and I will be praying for you guys!!

Lisa said...

I cried out of fear for weeks before Cate's surgery but after the tear were only of relief and happiness. I'm writing a log post right now about our OHS and I can still taste the fear but we just had our annual cardio follow-up & everything is perfect!!!
Stay strong, you can do this and so can she.

Jane@flightplatformliving said...

big big big hugs...you are one amazing mama and your family are so adorable! oh boy that picture of all the feet!!!

you will be in my prayers dear girl for the surgery to come.

i am now following my blogs in google reader so hopefully i will be more organised in commenting and reading. thankyou for your blog over the year and have a blessed new year. lots of love from jane at the flight platform xxxx